Autism Around Alberta Newsletter

Autism Around Alberta Newsletter2023-11-09T13:27:21-07:00

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Autism Around Alberta – October 2016 Edition

Autism Families Looking For Jobs in Smaller Centres

Kitty Parlby
We’re an autism family that’s all grown up. By that I mean that our autistic son, Eric, is now an adult (and so is our older son, Adam). Eric will be 20 years old in November, so no more teenagers for us.

Eric’s autism is complex and runs on the more severe end of the scale, with all the classic symptoms. Filling his days with activities and purposeful work is a challenging, even though he has a community aide worker who accompanies him throughout the day.

In a medium-to-large city, you can likely find support when looking for a job for your family member with autism. There are organizations in the larger centres that have programs and services to facilitate job placement support for those with autism.

But what about those of us that live in or near a small city, town or village? Our family has had this struggle, and realistically, we expect that this will be a recurring issue throughout Eric’s lifespan. At Eric’s level of autism, it’s most important to us that he is doing something he enjoys that contributes to society, whether through volunteering or at a business. The ‘getting paid’ issue is secondary for us, although not unimportant. Any extra money on top of his AISH is very useful to put away for the future. The money issue might not be secondary to you and your family member with autism, depending on your circumstances.

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Autism Around Alberta – September 2016 Edition

Central Alberta Support & Information Group – September Update

Jessica Schurman

On September 12, 2016, eighteen parents gathered at the GH Dawe Community Centre to discuss some of their challenges and successes so far during the new school year. We got to hear from some parents about the things that have been going great for their children, and we also had the chance to provide support and talk through some suggestions for others who are experiencing a difficult transition back to school. Parents enjoyed meeting and connecting with others on a similar journey, and I loved that we had some parents of older (high school and middle school) children come out and share what the new school year looks like for them and their family. They also really enjoyed the free childminding that is graciously provided by ASA for some well-needed respite – this month, we had a record 9 children in the Kidz Club!

The last thirty minutes of our meeting were dedicated to the discussion of any new business items that people in attendance wanted to discuss. Parents were very excited to hear about the plans made by the Social Solvers Crew about the Playdate Program – many parents were heading home to fill out the Social Skills and Information Profile and await their child’s match! If you'd like to learn more, visit www.socialsolvers.ca.

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Autism Around Alberta – August 2016 Edition

Moving Mountains – My AGM Experience

Jessica Schurman
On Saturday, August 20th, Autism Society Alberta held its Annual General Meeting in Red Deer. I walked into the meeting feeling lower than low, discouraged; my bucket was empty. Three children, 17 loads of laundry, a van covered in Rice Krispies, and having only 24 hours to prepare for a mini-lake vacation will do that to you. Five hours is a great deal of time for anyone to dedicate and commit to a meeting, but wow, what a five hours it was. Everyone there had their own 17 loads of laundry and cereal covered minivan waiting for them, but they volunteered their time, showed up, and shared! I walked away from the AGM feeling completely inspired by the twenty people from across Alberta who were in attendance at the table and over the phone.
 
It was not five hours of budgets and reports – it was time spent learning and celebrating the other events and initiatives happening all over Alberta. For myself, on a personal level, it was a chance to spend time and connect with other parents and grandparents from across the province who are actively working to make the lives of all people touched by autism better. They are working tirelessly on policy, fundraising, and awareness. Most importantly (for me), I get the privilege of sitting in a room with parents who have children who are significantly older than my daughter and gaining knowledge and tips from them for when we get there. The advice, in my mind, is invaluable. My Matea is ten years shy of adulthood, but what a fast ten years I know it will be. I am forever thankful to this group of men and women who give of their time and their experience to help me and my daughter.
 

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Autism Around Alberta – July 2016 Edition

Autism Alberta AGM – August 20, 2016

Deborah Barrett

I used to think Annual General Meetings were boring, not something that would interest me. That changed a lot when I got involved in the autism community. I learned that Annual General Meetings were my chance to find out what was going on in the broader autism world. AGMs were my chance to try to shape a future for my son and my family. They were my chance to meet families just a little further down the road than I was, families that freely shared from their experience and helped me navigate the next set of challenges. In short, I learned that I was short-changing myself if I didn’t attend. Annual General Meetings have become a way to meet more of the autism community across Alberta. Yes, it takes a day out of my life, but it’s also a day that gives me life . . . and connection . . . and community. I invite you to join us. See if it does the same for you.

Autism Alberta’s Annual General Meeting
Saturday, August 20, 2016
10: 00 AM – 3:00 PM

Board Room
GH Dawe Centre
56 Holt St
Red Deer, Alberta


RSVP to info@autismalberta.ca
by 4:00 PM, Thursday, Aug 18, 2016

Child Care is available, but we MUST know your needs by 4 PM, August 12, 2016. Please note, this is a week earlier than the general RSVP.

Autism Around Alberta – June 2016 Edition

Fort McMurray Community Discussions

David Nicholas and Amber Young
Autism Alberta, the University of Calgary, and community leaders and partners are working together to better understand the information and resource needs related to autism spectrum disorder (ASD) for rural, remote, and northern communities in Alberta. On April 20th and April 21st, two terrific in-person meetings, led by Kirsti Mardell and Tosha Moore, identified areas to advance in Fort McMurray. Approximately 40 community members with a range of experiences participated in the meetings, including family members of individuals with ASD, service providers, and even a local media representative! Click here to see the media story.

The attendees were generous in sharing their knowledge, visions, hopes, and dreams that would enhance the lives of children, youth, and families in the Fort McMurray autism community. Participants identified the current strengths of the community, as well as areas where advancement is required to ensure a high quality of life for individuals and families touched by ASD – for example, addressing gaps in services for teenagers and young adults with ASD.

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Autism Around Alberta – May 2016 Edition

Alberta’s Autism Community Pulls Together in Support of Fire-Affected Families

Jade Nesvold

Thank you all for your outpouring of concern and support for Alberta’s wildfire evacuees.

Autism Edmonton has received calls from both those who want to help and those who need help – and we’re so appreciative of everyone’s generosity and patience. Local agencies have admirably stepped up to provide assistance to the 180+ families with autism who’ve been displaced, and people from across the province and country have been contacting us to offer a helping hand.

 

We want those affected to know we’re here to help them find resources in the Edmonton area, as they and their families are separated from their regular support systems. We can help connect families and individuals with the information, services and support that they need.

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Autism Around Alberta – April 2016 Edition

Is Your Partner on the Spectrum?

Marie Walker

Is your relationship clearly difficult, but you feel you love each other? Are you like a couple trying to dance but not hearing the same rhythm?  This year, Autism Edmonton started a drop-in discussion group for adults in relationship with individuals with ASD. Members learn about high functioning autism and have the opportunity to discuss their own experiences with others in similar situations. An official diagnosis of autism is not required.

In the past year we have had two special information nights with professional speakers. Diane Hinves, PhD, a marriage and family therapist and psychologist with a special interest in neurology and how brain function may be affected by autism, and Cory Hrushka, psychologist and sex therapist, spoke to our group and answered questions. Other discussions were led by Support Services staff and volunteers. Topics we focused on were core aspects of autism, social needs of the neurotypical partner, lack of clarity around needs, and socializing as a couple.

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Autism Around Alberta – March 2016 Edition

Stepping Out of My Comfort Zone

Erika Rowden
Up until this year, the mention of a play date for Conor sent my blood pressure sky high and stress levels through the roof! I had tried so many times to organize them for him, and pretty much every one ended in disaster. You know what I mean – you apologize to the other parent, you feel terrible because the other child has not had a good time, and after all that you still have to deal with a very escalated child because the whole experience has been too overwhelming for them.
 
I’m pretty sure my change of mind about having play dates for Conor came about after listening to Temple Grandin at the Autism Conference. We had been working on social skills and appropriate interaction with peers for so long and these ‘new skills’ need to be practiced. I knew that I had to step out of my comfort zone and get working on this. After all, I see Conor every day stepping out of his comfort zone: to attend school, extracurricular activities, and therapy, so now it was my turn.
 
I am so fortunate to have met the most amazing people through our chapter in Central Alberta. And these are the people I approached for a play date. I knew there would be understanding, support and acceptance which are what I needed.
 
I prepped Conor for what was to come, starting with how to answer the door and greet his friends. We talked about suitable activities inside and outside. Conor absolutely loves Lego so we decided to make this a theme for the play date. We talked about interacting with friends, complimenting them on their ideas and building with a friend rather than by himself.
 
We planned snacks and what to do when he was in the ‘yellow zone’. Conor had set up a quiet corner, so he knew that would be a good place to go to for a break. When movement breaks were needed, he came up with the options of playing outside, playing a Wii sports game, or using his sensory equipment. Lastly, we practiced saying goodbye when the time came. I made sure that I had extra support because I knew that this would be essential for both of us!
 

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Autism Around Alberta – February 2016 Edition

Appreciation and ASD: Lessons Learned from a Brother with Autism

Graeme Wyatt
Growing up as the sibling of someone with autism spectrum disorder (ASD) can be demoralizing and heartbreaking. Bizarre behaviour, public outbursts, confusing interactions, and the inability to predict what will happen next are taxing on everyone, including the child with autism. But the lessons to be learned from a secretive, mysterious, and uniquely brilliant mind can reward those whose lives are touched by this peculiar disorder in a profound way.  

My older brother Ian was diagnosed with ASD before I was born. Long before I knew what ASD actually was, I knew what it looked like. My brother has many behavioural quirks, which make him who he is: difficulty speaking, loud outbursts, volatile moods, and weird dietary preferences are the first things that come to mind when I remember the early years. But the behaviour that I remember the most was how Ian watched movies.

Ian would fast forward to a scene in a movie that he liked, and watch it over and over again. There was nothing he enjoyed more than sitting two inches from the TV, rewinding and playing the same ten seconds of Toy Story and Aladdin. When I was kid there was nothing more annoying. Why would he want to watch the same scene repeatedly without watching the rest of the movie? A week later he might come back to the same scene, still unconcerned with whatever else the film had to offer.

This behaviour is characteristic of many of the people with autism I have met. Fixation on a single activity at the expense of everything else can leave caregivers and friends with a constant feeling of disconnect from their loved one. It’s hard not to see this kind of behaviour as abnormal and harmful. But the key point to remember is that this fixation is for a reason – it is not random. Where the average person sees a calculator, a person with autism may see an expression of order and beauty. This year, I finally realized that where I see a movie scene without context, my brother sees a perfect recreation of the feelings produced when he saw the scene the first time. 

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Autism Around Alberta – January 2016 Edition

Latest News from the Fort McMurray Autism Support Group

Kirsti Mardell
Autism Family Christmas Party

Fort McMurray Autism Support Group held an Autism Family Christmas Party sponsored by Sands Carpet One, Unifor Local 707A and the employees at Fort McMurray Kenworth. We also had donations from Walmart and Superstore. The Autism Family Christmas Party was held at the Syncrude Sports and Wellness Centre on December 20th. There were two bouncy castles, a craft table set up for making Christmas decorations, and snacks, including home made cupcakes. Kids had the chance to have their picture taken with Santa, who was also able to give each child a little gift bag which included stickers, colouring books crayons, a candy cane and some bubbles. We had roughly twenty families come out and enjoy a relaxing and fun time. Parents commented on how wonderful it was to be able to relax and have their kids have fun, too. 
 

We would like to thank our sponsors, Sands Carpet One, Unifor Local 707A and the Employees at Kenworth, for making this event possible this year. 


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Autism Around Alberta – December 2015 Edition

Simple Gifts

Erin Peden
It’s almost the end of the year! Sound the trumpets! Good things are coming!

I love New Year’s – not because of the big parties (those don’t happen for us anymore) and not because of the idea of resolutions (as if we don’t already have enough on our plate) – but because it’s a time to reflect.  

The way my husband and I see it, New Year’s is not a time to resolve.  We’ve already made three life-changing resolutions and as far as we’re concerned, that’s enough. The first time we resolved to change our life was when we had our daughter. The second was when we adopted our son, and the third came after our son’s diagnosis of Autism Spectrum Disorder, when we resolved to ‘learn from the [insert daily catastrophic moment here] and do better’ every single day. Seriously though, we find ourselves making the resolution to ‘try again tomorrow’ on a daily basis, so adding an annual ‘do better’ commitment is way too overwhelming.

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Autism Around Alberta – November 2015 Edition

Doing Christmas

Erin Peden
As November tumbles into December, the scenes around us begin to change from the drab and dreary to the bright and flashy. Blow-up snowmen, big bows and twinkling lights start to pop up in everyone’s neighbourhoods. Some strangers become exasperatingly cheerful while others start to push and shove, and the crisp winter air starts to smell like a confusing mix of cinnamon, pine cones and car exhaust.

Ahhhhhh, Christmas. 

 
I grew up in a home where the season of Christmas was a month long affair and each and every year the motto of "more is more" was silently implemented. It was an opportunity to be over the top with love, happiness and food. More was more! More cookies = more happiness. More Christmas music = more cheer. More cheer = even more cheer (and a well-earned headache). ’Tis the season to go all-in and not have to worry about the fallout until the lights go out on January 1. As a family, we were really good at "doing Christmas", so it went without saying I was fully committed to raising my own children to experience the season of giving, loving and eating the way I learned to in my early years.
 
My son was just one year old when Christmas began to morph from the most wonderful time of the year to the most devastatingly disastrous time of the year. In my parents’ busy home, the music was loud, the food was plenty and the eggnog was fresh. My brothers and their families had arrived and the hustle and bustle of happiness should have been in full force. 
 
Except no one could stand my kid.
 

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Autism Around Alberta – October 2015 Edition

Our ASD: The First Year Following Diagnosis

Erika Rowden
Conor was diagnosed in Sept 2014 through the TAC (Transdisciplinary Assessment Consultation) program at Aspire in Red Deer. When I found out he had ASD, I was so relieved that I finally had an answer. I knew from age 2 that there was something a little different about my son: he was extremely ‘busy’, nothing kept his attention, he was a thrill seeker, and had a very high pain tolerance. But his speech was delayed, he did not interact well or at all with other children, and he loved to wander.
 
Oh yes, I shed tears, but I knew I had to get to work. There was so much that I had to learn about. I started reading about autism, applying for the Disability Tax Credit, contacting FSCD, setting up the RDSP and getting him settled into Kindergarten. My pile of paperwork started to grow!
 

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Autism Around Alberta – September 2015 Edition

My Kids Get It

Candice Bowie
I always get a little bit of a funny look when I say how many kids we have. These days a family with four children isn’t quite as “normal” as it used to be, and with them all being within two years of each other, we are a very busy bunch.

I used to feel like I needed to explain the size of our family, or justify why we would have more children even after David was diagnosed with ASD. Were we being fair to him?  Were we being fair to the other children?  David is on the severe end of the spectrum, so yes, he takes up a lot of time. But over the last year or so I have started to see why our family is perfect in its size, how each child was so very meant to be. I never questioned that we loved and wanted all of them, but occasionally I would wonder, was I being fair? Was there enough of me to go around?

My children are never without a playmate, or a role model.  Watching my two smaller children grow and play has been amazing: they are so creative and enthusiastic when they talk and share ideas. But watching my  two-year-old role model language and social interactions and then praise her brother because he said “Hi” is amazing. She is going to be a leader – she already is.

I remember watching my four-year-old see his brother really melt down for the first time in public., he had seen it a million times before but he was really seeing it, he was starting to own it. When his friend looked to him to say, “What’s wrong with your brother?”, Callum simply looked at his friend and said, “David’s autismal, he will be done in a minute…” No, that’s not a typo, and no, I did not correct him. He’s going to be an understanding adult who will see past other differences and into the heart of the person – I was and am so proud.

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Autism Around Alberta – August 2015 Edition

Getting Ready for Back to School

Kitty Parlby

Have you noticed that summer is slipping by so quickly? In no time you’ll be thinking about transitioning your child with developmental special needs back to school. Just like any student, they may not want to go back. On top of that, they have to once again get used to being around their fellow students and interacting with them, following instructions from teachers and aides, and the sensory overload sure to be found in almost any school.

So what can you do to help your child or your student with autism to get ready? Here are a few pointers to help you get started, and maybe inspire you to come up with your own personalized solutions. Whether you’re a parent, a teacher or and aide, being proactive can save you a lot of trouble!

At home you can start by reading fun stories about going back to school. Even make your own social story about going back to school, if you know how. If you have any photos of fellow students or the school and staff you can look at them and talk about them. You can also go visit the school playground to familiarize them with it. It would be even better to arrange a playground date with other students who will be going back to school with your child.

Usually the staff goes back to school a week before the students. Take your child into the school two or three times during that week to get them used to their teacher and/or aide, the echoing sounds, the lights, the gym, the bathroom, the playground, etcetera. Pack a lunch and eat it wherever your child would normally eat lunch. Find out where her desk will be and read a fun book or color a picture while sitting there. Take photos of her teacher, aide desk, and other key areas so that you can look at them at home and talk about them.

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