Autism Around Alberta – November 2016 Edition
Three Stressful Mistakes
My name is Kitty Parlby. I am:- the mother of a son with severe autism
- a special needs Educational Assistant
- a speaker/presenter on the subject of autism
- a member of the Board of Directors for Autism Alberta
1. Reading up on and using only one type of autism strategy
Autism Around Alberta – October 2016 Edition
Autism Families Looking For Jobs in Smaller Centres
In a medium-to-large city, you can likely find support when looking for a job for your family member with autism. There are organizations in the larger centres that have programs and services to facilitate job placement support for those with autism.Autism Around Alberta – September 2016 Edition
Central Alberta Support & Information Group – September Update
On September 12, 2016, eighteen parents gathered at the GH Dawe Community Centre to discuss some of their challenges and successes so far during the new school year. We got to hear from some parents about the things that have been going great for their children, and we also had the chance to provide support and talk through some suggestions for others who are experiencing a difficult transition back to school. Parents enjoyed meeting and connecting with others on a similar journey, and I loved that we had some parents of older (high school and middle school) children come out and share what the new school year looks like for them and their family. They also really enjoyed the free childminding that is graciously provided by ASA for some well-needed respite – this month, we had a record 9 children in the Kidz Club!
The last thirty minutes of our meeting were dedicated to the discussion of any new business items that people in attendance wanted to discuss. Parents were very excited to hear about the plans made by the Social Solvers Crew about the Playdate Program – many parents were heading home to fill out the Social Skills and Information Profile and await their child’s match! If you'd like to learn more, visit www.socialsolvers.ca.
Autism Around Alberta – August 2016 Edition
Moving Mountains – My AGM Experience
It was not five hours of budgets and reports – it was time spent learning and celebrating the other events and initiatives happening all over Alberta. For myself, on a personal level, it was a chance to spend time and connect with other parents and grandparents from across the province who are actively working to make the lives of all people touched by autism better. They are working tirelessly on policy, fundraising, and awareness. Most importantly (for me), I get the privilege of sitting in a room with parents who have children who are significantly older than my daughter and gaining knowledge and tips from them for when we get there. The advice, in my mind, is invaluable. My Matea is ten years shy of adulthood, but what a fast ten years I know it will be. I am forever thankful to this group of men and women who give of their time and their experience to help me and my daughter.
Autism Around Alberta – July 2016 Edition
Autism Alberta AGM – August 20, 2016
I used to think Annual General Meetings were boring, not something that would interest me. That changed a lot when I got involved in the autism community. I learned that Annual General Meetings were my chance to find out what was going on in the broader autism world. AGMs were my chance to try to shape a future for my son and my family. They were my chance to meet families just a little further down the road than I was, families that freely shared from their experience and helped me navigate the next set of challenges. In short, I learned that I was short-changing myself if I didn’t attend. Annual General Meetings have become a way to meet more of the autism community across Alberta. Yes, it takes a day out of my life, but it’s also a day that gives me life . . . and connection . . . and community. I invite you to join us. See if it does the same for you.
Autism Alberta’s Annual General Meeting
Saturday, August 20, 2016
10: 00 AM – 3:00 PM
Board Room
GH Dawe Centre
56 Holt St
Red Deer, Alberta
RSVP to info@autismalberta.ca
by 4:00 PM, Thursday, Aug 18, 2016
Child Care is available, but we MUST know your needs by 4 PM, August 12, 2016. Please note, this is a week earlier than the general RSVP.
Autism Around Alberta – June 2016 Edition
Fort McMurray Community Discussions
Autism Alberta, the University of Calgary, and community leaders and partners are working together to better understand the information and resource needs related to autism spectrum disorder (ASD) for rural, remote, and northern communities in Alberta. On April 20th and April 21st, two terrific in-person meetings, led by Kirsti Mardell and Tosha Moore, identified areas to advance in Fort McMurray. Approximately 40 community members with a range of experiences participated in the meetings, including family members of individuals with ASD, service providers, and even a local media representative! Click here to see the media story.Autism Around Alberta – May 2016 Edition
Alberta’s Autism Community Pulls Together in Support of Fire-Affected Families
Thank you all for your outpouring of concern and support for Alberta’s wildfire evacuees.
Autism Around Alberta – April 2016 Edition
Is Your Partner on the Spectrum?
Is your relationship clearly difficult, but you feel you love each other? Are you like a couple trying to dance but not hearing the same rhythm? This year, Autism Edmonton started a drop-in discussion group for adults in relationship with individuals with ASD. Members learn about high functioning autism and have the opportunity to discuss their own experiences with others in similar situations. An official diagnosis of autism is not required.
In the past year we have had two special information nights with professional speakers. Diane Hinves, PhD, a marriage and family therapist and psychologist with a special interest in neurology and how brain function may be affected by autism, and Cory Hrushka, psychologist and sex therapist, spoke to our group and answered questions. Other discussions were led by Support Services staff and volunteers. Topics we focused on were core aspects of autism, social needs of the neurotypical partner, lack of clarity around needs, and socializing as a couple.
Autism Around Alberta – March 2016 Edition
Stepping Out of My Comfort Zone
Up until this year, the mention of a play date for Conor sent my blood pressure sky high and stress levels through the roof! I had tried so many times to organize them for him, and pretty much every one ended in disaster. You know what I mean – you apologize to the other parent, you feel terrible because the other child has not had a good time, and after all that you still have to deal with a very escalated child because the whole experience has been too overwhelming for them.
We planned snacks and what to do when he was in the ‘yellow zone’. Conor had set up a quiet corner, so he knew that would be a good place to go to for a break. When movement breaks were needed, he came up with the options of playing outside, playing a Wii sports game, or using his sensory equipment. Lastly, we practiced saying goodbye when the time came. I made sure that I had extra support because I knew that this would be essential for both of us!Autism Around Alberta – February 2016 Edition
Appreciation and ASD: Lessons Learned from a Brother with Autism
My older brother Ian was diagnosed with ASD before I was born. Long before I knew what ASD actually was, I knew what it looked like. My brother has many behavioural quirks, which make him who he is: difficulty speaking, loud outbursts, volatile moods, and weird dietary preferences are the first things that come to mind when I remember the early years. But the behaviour that I remember the most was how Ian watched movies.
Ian would fast forward to a scene in a movie that he liked, and watch it over and over again. There was nothing he enjoyed more than sitting two inches from the TV, rewinding and playing the same ten seconds of Toy Story and Aladdin. When I was kid there was nothing more annoying. Why would he want to watch the same scene repeatedly without watching the rest of the movie? A week later he might come back to the same scene, still unconcerned with whatever else the film had to offer.
This behaviour is characteristic of many of the people with autism I have met. Fixation on a single activity at the expense of everything else can leave caregivers and friends with a constant feeling of disconnect from their loved one. It’s hard not to see this kind of behaviour as abnormal and harmful. But the key point to remember is that this fixation is for a reason – it is not random. Where the average person sees a calculator, a person with autism may see an expression of order and beauty. This year, I finally realized that where I see a movie scene without context, my brother sees a perfect recreation of the feelings produced when he saw the scene the first time.
Autism Around Alberta – January 2016 Edition
Latest News from the Fort McMurray Autism Support Group
Autism Family Christmas Party
Fort McMurray Autism Support Group held an Autism Family Christmas Party sponsored by Sands Carpet One, Unifor Local 707A and the employees at Fort McMurray Kenworth. We also had donations from Walmart and Superstore. The Autism Family Christmas Party was held at the Syncrude Sports and Wellness Centre on December 20th. There were two bouncy castles, a craft table set up for making Christmas decorations, and snacks, including home made cupcakes. Kids had the chance to have their picture taken with Santa, who was also able to give each child a little gift bag which included stickers, colouring books crayons, a candy cane and some bubbles. We had roughly twenty families come out and enjoy a relaxing and fun time. Parents commented on how wonderful it was to be able to relax and have their kids have fun, too.
We would like to thank our sponsors, Sands Carpet One, Unifor Local 707A and the Employees at Kenworth, for making this event possible this year.
Autism Around Alberta – December 2015 Edition
Simple Gifts
It’s almost the end of the year! Sound the trumpets! Good things are coming!
I love New Year’s – not because of the big parties (those don’t happen for us anymore) and not because of the idea of resolutions (as if we don’t already have enough on our plate) – but because it’s a time to reflect.
The way my husband and I see it, New Year’s is not a time to resolve. We’ve already made three life-changing resolutions and as far as we’re concerned, that’s enough. The first time we resolved to change our life was when we had our daughter. The second was when we adopted our son, and the third came after our son’s diagnosis of Autism Spectrum Disorder, when we resolved to ‘learn from the [insert daily catastrophic moment here] and do better’ every single day. Seriously though, we find ourselves making the resolution to ‘try again tomorrow’ on a daily basis, so adding an annual ‘do better’ commitment is way too overwhelming.
Autism Around Alberta – November 2015 Edition
Doing Christmas
As November tumbles into December, the scenes around us begin to change from the drab and dreary to the bright and flashy. Blow-up snowmen, big bows and twinkling lights start to pop up in everyone’s neighbourhoods. Some strangers become exasperatingly cheerful while others start to push and shove, and the crisp winter air starts to smell like a confusing mix of cinnamon, pine cones and car exhaust.
Ahhhhhh, Christmas.
Autism Around Alberta – October 2015 Edition
Our ASD: The First Year Following Diagnosis
Oh yes, I shed tears, but I knew I had to get to work. There was so much that I had to learn about. I started reading about autism, applying for the Disability Tax Credit, contacting FSCD, setting up the RDSP and getting him settled into Kindergarten. My pile of paperwork started to grow!Autism Around Alberta – September 2015 Edition
My Kids Get It
I always get a little bit of a funny look when I say how many kids we have. These days a family with four children isn’t quite as “normal” as it used to be, and with them all being within two years of each other, we are a very busy bunch.
I used to feel like I needed to explain the size of our family, or justify why we would have more children even after David was diagnosed with ASD. Were we being fair to him? Were we being fair to the other children? David is on the severe end of the spectrum, so yes, he takes up a lot of time. But over the last year or so I have started to see why our family is perfect in its size, how each child was so very meant to be. I never questioned that we loved and wanted all of them, but occasionally I would wonder, was I being fair? Was there enough of me to go around?
My children are never without a playmate, or a role model. Watching my two smaller children grow and play has been amazing: they are so creative and enthusiastic when they talk and share ideas. But watching my two-year-old role model language and social interactions and then praise her brother because he said “Hi” is amazing. She is going to be a leader – she already is.
I remember watching my four-year-old see his brother really melt down for the first time in public., he had seen it a million times before but he was really seeing it, he was starting to own it. When his friend looked to him to say, “What’s wrong with your brother?”, Callum simply looked at his friend and said, “David’s autismal, he will be done in a minute…” No, that’s not a typo, and no, I did not correct him. He’s going to be an understanding adult who will see past other differences and into the heart of the person – I was and am so proud.
