Autism Around Alberta

Autism Around Alberta – October 2016 Edition

Autism Families Looking For Jobs in Smaller Centres

Kitty Parlby
We’re an autism family that’s all grown up. By that I mean that our autistic son, Eric, is now an adult (and so is our older son, Adam). Eric will be 20 years old in November, so no more teenagers for us.

Eric’s autism is complex and runs on the more severe end of the scale, with all the classic symptoms. Filling his days with activities and purposeful work is a challenging, even though he has a community aide worker who accompanies him throughout the day.

In a medium-to-large city, you can likely find support when looking for a job for your family member with autism. There are organizations in the larger centres that have programs and services to facilitate job placement support for those with autism.

But what about those of us that live in or near a small city, town or village? Our family has had this struggle, and realistically, we expect that this will be a recurring issue throughout Eric’s lifespan. At Eric’s level of autism, it’s most important to us that he is doing something he enjoys that contributes to society, whether through volunteering or at a business. The ‘getting paid’ issue is secondary for us, although not unimportant. Any extra money on top of his AISH is very useful to put away for the future. The money issue might not be secondary to you and your family member with autism, depending on your circumstances.

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Autism Around Alberta – October 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – September 2016 Edition

Central Alberta Support & Information Group – September Update

Jessica Schurman

On September 12, 2016, eighteen parents gathered at the GH Dawe Community Centre to discuss some of their challenges and successes so far during the new school year. We got to hear from some parents about the things that have been going great for their children, and we also had the chance to provide support and talk through some suggestions for others who are experiencing a difficult transition back to school. Parents enjoyed meeting and connecting with others on a similar journey, and I loved that we had some parents of older (high school and middle school) children come out and share what the new school year looks like for them and their family. They also really enjoyed the free childminding that is graciously provided by ASA for some well-needed respite – this month, we had a record 9 children in the Kidz Club!

The last thirty minutes of our meeting were dedicated to the discussion of any new business items that people in attendance wanted to discuss. Parents were very excited to hear about the plans made by the Social Solvers Crew about the Playdate Program – many parents were heading home to fill out the Social Skills and Information Profile and await their child’s match! If you'd like to learn more, visit www.socialsolvers.ca.

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Autism Around Alberta – September 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – August 2016 Edition

Moving Mountains – My AGM Experience

Jessica Schurman
On Saturday, August 20th, Autism Society Alberta held its Annual General Meeting in Red Deer. I walked into the meeting feeling lower than low, discouraged; my bucket was empty. Three children, 17 loads of laundry, a van covered in Rice Krispies, and having only 24 hours to prepare for a mini-lake vacation will do that to you. Five hours is a great deal of time for anyone to dedicate and commit to a meeting, but wow, what a five hours it was. Everyone there had their own 17 loads of laundry and cereal covered minivan waiting for them, but they volunteered their time, showed up, and shared! I walked away from the AGM feeling completely inspired by the twenty people from across Alberta who were in attendance at the table and over the phone.
 
It was not five hours of budgets and reports – it was time spent learning and celebrating the other events and initiatives happening all over Alberta. For myself, on a personal level, it was a chance to spend time and connect with other parents and grandparents from across the province who are actively working to make the lives of all people touched by autism better. They are working tirelessly on policy, fundraising, and awareness. Most importantly (for me), I get the privilege of sitting in a room with parents who have children who are significantly older than my daughter and gaining knowledge and tips from them for when we get there. The advice, in my mind, is invaluable. My Matea is ten years shy of adulthood, but what a fast ten years I know it will be. I am forever thankful to this group of men and women who give of their time and their experience to help me and my daughter.
 

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Autism Around Alberta – August 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – July 2016 Edition

Autism Alberta AGM – August 20, 2016

Deborah Barrett

I used to think Annual General Meetings were boring, not something that would interest me. That changed a lot when I got involved in the autism community. I learned that Annual General Meetings were my chance to find out what was going on in the broader autism world. AGMs were my chance to try to shape a future for my son and my family. They were my chance to meet families just a little further down the road than I was, families that freely shared from their experience and helped me navigate the next set of challenges. In short, I learned that I was short-changing myself if I didn’t attend. Annual General Meetings have become a way to meet more of the autism community across Alberta. Yes, it takes a day out of my life, but it’s also a day that gives me life . . . and connection . . . and community. I invite you to join us. See if it does the same for you.

Autism Alberta’s Annual General Meeting
Saturday, August 20, 2016
10: 00 AM – 3:00 PM

Board Room
GH Dawe Centre
56 Holt St
Red Deer, Alberta


RSVP to info@autismalberta.ca
by 4:00 PM, Thursday, Aug 18, 2016

Child Care is available, but we MUST know your needs by 4 PM, August 12, 2016. Please note, this is a week earlier than the general RSVP.

Autism Around Alberta – July 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – June 2016 Edition

Fort McMurray Community Discussions

David Nicholas and Amber Young
Autism Alberta, the University of Calgary, and community leaders and partners are working together to better understand the information and resource needs related to autism spectrum disorder (ASD) for rural, remote, and northern communities in Alberta. On April 20th and April 21st, two terrific in-person meetings, led by Kirsti Mardell and Tosha Moore, identified areas to advance in Fort McMurray. Approximately 40 community members with a range of experiences participated in the meetings, including family members of individuals with ASD, service providers, and even a local media representative! Click here to see the media story.

The attendees were generous in sharing their knowledge, visions, hopes, and dreams that would enhance the lives of children, youth, and families in the Fort McMurray autism community. Participants identified the current strengths of the community, as well as areas where advancement is required to ensure a high quality of life for individuals and families touched by ASD – for example, addressing gaps in services for teenagers and young adults with ASD.

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Autism Around Alberta – June 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – May 2016 Edition

Alberta’s Autism Community Pulls Together in Support of Fire-Affected Families

Jade Nesvold

Thank you all for your outpouring of concern and support for Alberta’s wildfire evacuees.

Autism Edmonton has received calls from both those who want to help and those who need help – and we’re so appreciative of everyone’s generosity and patience. Local agencies have admirably stepped up to provide assistance to the 180+ families with autism who’ve been displaced, and people from across the province and country have been contacting us to offer a helping hand.

 

We want those affected to know we’re here to help them find resources in the Edmonton area, as they and their families are separated from their regular support systems. We can help connect families and individuals with the information, services and support that they need.

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Autism Around Alberta – May 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – April 2016 Edition

Is Your Partner on the Spectrum?

Marie Walker

Is your relationship clearly difficult, but you feel you love each other? Are you like a couple trying to dance but not hearing the same rhythm?  This year, Autism Edmonton started a drop-in discussion group for adults in relationship with individuals with ASD. Members learn about high functioning autism and have the opportunity to discuss their own experiences with others in similar situations. An official diagnosis of autism is not required.

In the past year we have had two special information nights with professional speakers. Diane Hinves, PhD, a marriage and family therapist and psychologist with a special interest in neurology and how brain function may be affected by autism, and Cory Hrushka, psychologist and sex therapist, spoke to our group and answered questions. Other discussions were led by Support Services staff and volunteers. Topics we focused on were core aspects of autism, social needs of the neurotypical partner, lack of clarity around needs, and socializing as a couple.

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Autism Around Alberta – April 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – March 2016 Edition

Stepping Out of My Comfort Zone

Erika Rowden
Up until this year, the mention of a play date for Conor sent my blood pressure sky high and stress levels through the roof! I had tried so many times to organize them for him, and pretty much every one ended in disaster. You know what I mean – you apologize to the other parent, you feel terrible because the other child has not had a good time, and after all that you still have to deal with a very escalated child because the whole experience has been too overwhelming for them.
 
I’m pretty sure my change of mind about having play dates for Conor came about after listening to Temple Grandin at the Autism Conference. We had been working on social skills and appropriate interaction with peers for so long and these ‘new skills’ need to be practiced. I knew that I had to step out of my comfort zone and get working on this. After all, I see Conor every day stepping out of his comfort zone: to attend school, extracurricular activities, and therapy, so now it was my turn.
 
I am so fortunate to have met the most amazing people through our chapter in Central Alberta. And these are the people I approached for a play date. I knew there would be understanding, support and acceptance which are what I needed.
 
I prepped Conor for what was to come, starting with how to answer the door and greet his friends. We talked about suitable activities inside and outside. Conor absolutely loves Lego so we decided to make this a theme for the play date. We talked about interacting with friends, complimenting them on their ideas and building with a friend rather than by himself.
 
We planned snacks and what to do when he was in the ‘yellow zone’. Conor had set up a quiet corner, so he knew that would be a good place to go to for a break. When movement breaks were needed, he came up with the options of playing outside, playing a Wii sports game, or using his sensory equipment. Lastly, we practiced saying goodbye when the time came. I made sure that I had extra support because I knew that this would be essential for both of us!
 

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Autism Around Alberta – March 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – February 2016 Edition

Appreciation and ASD: Lessons Learned from a Brother with Autism

Graeme Wyatt
Growing up as the sibling of someone with autism spectrum disorder (ASD) can be demoralizing and heartbreaking. Bizarre behaviour, public outbursts, confusing interactions, and the inability to predict what will happen next are taxing on everyone, including the child with autism. But the lessons to be learned from a secretive, mysterious, and uniquely brilliant mind can reward those whose lives are touched by this peculiar disorder in a profound way.  

My older brother Ian was diagnosed with ASD before I was born. Long before I knew what ASD actually was, I knew what it looked like. My brother has many behavioural quirks, which make him who he is: difficulty speaking, loud outbursts, volatile moods, and weird dietary preferences are the first things that come to mind when I remember the early years. But the behaviour that I remember the most was how Ian watched movies.

Ian would fast forward to a scene in a movie that he liked, and watch it over and over again. There was nothing he enjoyed more than sitting two inches from the TV, rewinding and playing the same ten seconds of Toy Story and Aladdin. When I was kid there was nothing more annoying. Why would he want to watch the same scene repeatedly without watching the rest of the movie? A week later he might come back to the same scene, still unconcerned with whatever else the film had to offer.

This behaviour is characteristic of many of the people with autism I have met. Fixation on a single activity at the expense of everything else can leave caregivers and friends with a constant feeling of disconnect from their loved one. It’s hard not to see this kind of behaviour as abnormal and harmful. But the key point to remember is that this fixation is for a reason – it is not random. Where the average person sees a calculator, a person with autism may see an expression of order and beauty. This year, I finally realized that where I see a movie scene without context, my brother sees a perfect recreation of the feelings produced when he saw the scene the first time. 

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Autism Around Alberta – February 2016 Edition2023-12-08T12:59:14-07:00

Autism Around Alberta – January 2016 Edition

Latest News from the Fort McMurray Autism Support Group

Kirsti Mardell
Autism Family Christmas Party

Fort McMurray Autism Support Group held an Autism Family Christmas Party sponsored by Sands Carpet One, Unifor Local 707A and the employees at Fort McMurray Kenworth. We also had donations from Walmart and Superstore. The Autism Family Christmas Party was held at the Syncrude Sports and Wellness Centre on December 20th. There were two bouncy castles, a craft table set up for making Christmas decorations, and snacks, including home made cupcakes. Kids had the chance to have their picture taken with Santa, who was also able to give each child a little gift bag which included stickers, colouring books crayons, a candy cane and some bubbles. We had roughly twenty families come out and enjoy a relaxing and fun time. Parents commented on how wonderful it was to be able to relax and have their kids have fun, too. 
 

We would like to thank our sponsors, Sands Carpet One, Unifor Local 707A and the Employees at Kenworth, for making this event possible this year. 


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Autism Around Alberta – January 2016 Edition2023-12-08T12:59:14-07:00
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