Autism Around Alberta

Autism Around Alberta – June 2018 Edition

Traveling with Eric
Kitty Parlby

This spring our family of four went for a long-overdue vacation. Eric had been asking for YEARS to go back to Orlando. We went when he was around twelve years old; now he is twenty-one and a solid 6 foot guy. I clearly remember the challenges of the flight and the trip back then, and was not sure what to expect now that he is much older.

To start with, we picked the first two weeks of May to travel, when our older son Adam finished his term at university. In this way we succeeded in avoiding the most crowded times at attractions in Orlando. I did a lot of travel prep with Eric, including watching YouTube videos of attractions and rides, looking at photos of where we’d be staying, checking the weather in Orlando, and including him in packing for the trip.

 

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Autism Around Alberta – June 2018 Edition2023-12-08T12:58:42-07:00

Autism Around Alberta – May 2018 Edition

My Autism, Buried and Unearthed: How I Forgot and Learned to Remember Myself
A.J. Wells

I was diagnosed with Asperger’s Syndrome in 1995, at age eleven. At that time, I was going through a lot of difficulties: relentlessly bullied at school, and having no idea how to properly respond to what was happening to me. Prone to meltdowns and breakdowns, it should have been liberating to know more about myself, but the next twenty years were one long attempt to outrun my diagnosis, or forget about it entirely.

In my preteen years, my family discussed putting me on Prozac, but I went un-medicated through my teens and twenties. There was never any hard “no” to the use of medication; it just never happened, and I didn’t try to bring it up again. I did get aid from counsellors and support groups, but at the same time, I didn’t actually start to think differently about myself. There was never any conscious decision, but I gradually decided not to act as if I had Asperger’s. I decided that it would have no impact on my day-to-day life, or require other interventions.
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Autism Around Alberta – May 2018 Edition2023-12-08T12:58:42-07:00

Autism Around Alberta – April 2018 Edition

Our New Look

If you are a new Autism Alberta member and an Autism Around Alberta subscriber, welcome. If you are already a member and subscriber, you will notice we have a new look. It was inspired by an easier way to put each issue together. We hope you will like the new look and that it will be easier than ever to enjoy Autism Around Alberta.

If you’d like to tell us what you think about our new look, or if you have any other feedback about Autism Around Alberta, please send us an e-mail at AAA@autismalberta.ca, Tweet @AutismSocietyAB, or visit our Facebook page. (more…)

Autism Around Alberta – April 2018 Edition2023-12-08T12:58:42-07:00

Autism Around Alberta – March 2018 Edition

Proposed AISH Act Changes Allow Financial Security

Government of Alberta press release – March 19, 2018

New legislation would ensure that parents and guardians have more options to plan for the long-term financial needs of family members with disabilities.

Minister Sabir with families of Albertans with disabilities and advocates speaking to the introduction of Bill 5: Act to Strengthen Financial Security for Persons with Disabilities.

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Autism Around Alberta – March 2018 Edition2023-12-08T12:58:43-07:00

Autism Around Alberta – February 2018 Edition

#MakeDTCFair

On Thursday, February 1, 2018, Autism Canada testified at the Senate Standing Committee on Social Affairs, Science and Technology regarding the Disability Tax Credit (DTC) and the Registered Disability Savings Plan (RDSP). During this meeting, Autism Canada discussed our five recommendations for improving accessibility to the DTC and RDSP:

  1. Create clear, transparent and informed processes for applications, reviews and appeals;
  2. Develop clear, consistent and universally accepted classification criteria for disabilities;
  3. Uncouple the RDSP from the DTC;
  4. Monitor and evaluate population-based disability data at the federal level; and,
  5. Include the neurodevelopmental community on the Disability Advisory Committee.

Read the full Senate Committee Submission here.

Later that afternoon, Dermot Cleary (Chair, Autism Canada), Paul McDonnell (PhD., L.Psych. Psychologist, New Brunswick) and Jennifer Zwicker (PhD., Director of Health Policy, School of Public Policy, University of Calgary) met with the Office of National Revenue. They discussed the five recommendations in detail with Anne Ellefsen-Gauthier (Director of Policy, Office of the Minister of National Revenue) and Josée Guilmette (Chief of Staff, Canada Revenue Agency), and provided them a copy of our Senate Committee Submission.

Autism Canada is committed to making this right for the autism community across Canada. We will keep you posted on our progress. In the meantime, we are asking you to use the hashtag #MakeDTCFair on Facebook, Twitter and Instagram. Please like and share Autism Canada’s posts on this important issue so that our voices will be heard.

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Autism Around Alberta – February 2018 Edition2023-12-08T12:58:43-07:00

Autism Around Alberta – January 2018 Edition

Siblings

Erika Rowden
Conor, my son on the spectrum, has a younger brother named Shea, age 5. I write so much about Conor that this time I wanted to write something about his brother and how autism has impacted him. I dedicate this article to all the amazing siblings out there – you are not only a brother or sister, but also an advocate, therapy assistant, friend, and so much more to our ASD children!

When Shea was born I knew it would take Conor a little time to adjust to having someone else share the spotlight… but I did not think it would take years! This was pre-diagnosis, and knowing what I know now, I totally get it. The change in his world was so huge that he could not deal with it, and he used behaviour to express those feelings. I could not understand how others would always say that their child just loved being an older brother or sister, when mine was totally the opposite!

For the best part of two years I was concerned for Shea’s safety with Conor. Conor was very aggressive towards his little brother, and would often hit him on the head or choke hold him. Once Shea could stand up for himself a little and was more mobile, things slowly improved. I also got to see how very, very different they were in every way. I can totally remember when Shea first smiled; with Conor, I can’t recall. Shea did so many ‘normal’ baby things, but Conor certainly did not!

Conor was diagnosed when Shea was three years old. From that age Shea became familiar with therapy, respite, and sensory tools, to name just a few. He has totally embraced it all, and has always wanted to be a part of Conor’s therapy sessions. He teaches Conor about appropriate play, behaviour and conversation. Shea loves to play, and he brings Conor ‘out of himself’, because he won’t take no for an answer! It has been amazing to watch that bond and friendship grow. He loves to watch Conor’s basketball games, and now Conor is happy to watch him play hockey. They encourage and motivate each other, and Shea is a great role model for Conor.

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Autism Around Alberta – January 2018 Edition2023-12-08T12:58:43-07:00

Autism Around Alberta – November 2017 Edition

Autism Alberta Alliance Update

Shino Nakane

On November 3, the Autism Alberta Alliance hosted a stakeholder engagement session with participants from all over Alberta. More than 120 key stakeholders registered to attend the event. Despite severe weather and driving conditions, 56 participants were able to make it to Red Deer.

From a regional perspective, we had exceptional geographical representation. Participants came from Grande Prairie, Fort McMurray, Edmonton, Red Deer, Alex, Olds, Calgary and even Canmore. Although a few individuals from places like Medicine Hat and Lethbridge attempted to brave the roads, the conditions made it unsafe for them to continue their journey.


Marie Renaud, MLA
Stakeholders included some of the main ASD specialist agencies and a wide diversity from other sectors: educators, health professionals, researchers, employment support, housing and intervention specialists, sports/recreation, parents, self-advocates, and many others.

Special guests included Marie Renaud, MLA for St. Albert and Deputy Chair for the Premier’s Council on the Status of Persons with Disabilities, who dazzled guests with her warm welcome and opening remarks to the group. A senior representative from the Inclusion and Accessibility Division of the Ministry of Community and Social Services participated in the day’s activities and networked with other participants. Representatives from the Autism Society Alberta Board and members from the Provincial Parent Advisory Committee were also present, lending their support to the formation of the Autism Alberta Alliance.



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Autism Around Alberta – November 2017 Edition2023-12-08T12:58:43-07:00

Autism Around Alberta – October 2017 Edition

Engaging About Autism

Kitty Parlby
It’s here – it’s autism awareness month! I really like the idea of sharing information and stories with the world around us; not just the elating and rewarding parts, but also the challenges and struggles. Because I do speaking, training and consulting on autism, I get more chances than most to do this. But any individual or family highly affected by autism can help others learn more, and I’m going to discuss some ways you can do that. Not everyone chooses to share; it’s a very individual choice. But for our family, it’s a year-round, everyday thing.

Eric has what’s often referred to as classical autism, and all the symptoms that go with it. So although autism is called an invisible challenge because you can’t see it, that’s not so much the case with Eric. With his odd noises and voice fluctuations, his offbeat galloping gait, and his ritualistic hand, arm and head movements, you would know within seconds that something is up. It is to Eric’s benefit that people around him have some understanding.

I am not a self-conscious person, and Eric sure isn’t, either. It has never bothered me that people stare at him. I choose to interpret it as a sign of interest, not rudeness; I consider it an invitation to tell them about autism. It’s a perfectly natural reflex to look closely at something you don’t understand. I encourage you to make a conscious choice to not be offended, whether you choose to speak to them about autism or not. A positive point of view can be contagious! As for me, I almost always choose to engage with them. When Eric and I are out and about, and he’s making his startling movements and loud noises, I am smiling in his direction. I am using body language to communicate to the people around us that nothing is wrong; everything is okay.

Eric often wears humorous autism T-shirts when we go out in public. I started this experiment years ago, thinking that people are often more comfortable and understanding if they have more information. The difference was amazing and immediate. People smile instead of frown. I can hear parents tell their children to not worry about the loud noises – he just has autism. Many people come up to us to ask questions or tell Eric they like his t-shirt. Employees at stores, museums, theatres, and zoos are more patient and friendly. Wearing T-shirts like this is not for everyone. Some individuals would rather blend in, or pick and choose who they tell, and that’s okay too!

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Autism Around Alberta – October 2017 Edition2023-12-08T12:58:43-07:00

Autism Around Alberta – September 2017 Edition

President’s Message

Jason Scheyen
It is with great excitement and pride that I am taking on the role as President of Autism Society Alberta (ASA). I would like to thank our outgoing President, Deborah Barrett, for her dynamic leadership. Deborah has helped develop many great initiatives like Who Will Take Care of Our Kids, Autism Around Alberta, and Autism Alberta Alliance. Her leadership has also seen our organization become more financially viable. I hope we can continue to build on these initiatives, and to develop our strategic direction as our organization changes.

As a board member for the past three years I have learned a great deal more about people with autism, and I have met great people who desire to do great things. I look forward to my time of furthering existing initiatives, as well as taking direction from the board on the other places we wish to progress. Thanks to the groundwork laid by previous ASA boards, I am excited to say that I see tremendous opportunities ahead for our organization to lead the autism community in Alberta.

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Autism Around Alberta – September 2017 Edition2023-12-08T12:58:43-07:00
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